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 Cystic Fibrosis: the Facts
by Ann Harris, Maurice Super
Written for those suffering from CF and their families, this book explores all aspects of the disease from basic clinical information on what is going wrong in the organs affected by CF to the conventional treatments for CF lung and digestive disease. Since the second edition, which was published just after the CF gene was identified, major advances have occurred in our understanding of the genetic basis of CF. The third edition includes this new information and also has a new section on the potential for gene therapy being used in the future for the long-term treatment of this disease.
Cystic fibrosis is one of the most common genetic diseases in Caucasian populations. One in 2,500 babies are born with the disease, usually to parents who have no idea that they each carry one defective CF gene. CF affects the respiratory and digestive systems and, despite major improvements in treatment over the last 20 years, the disease is usually lethal before the third decade of life. Treatment is lifelong and time-consuming, necessitating eating enzyme capsules with every meal to help digest food, daily physiotherapy to keep the lungs clear of mucus, and frequent courses of antibiotics to control lung infections.
Cystic Fibrosis: the Facts - is available in paperback, 129 pages 3rd edition (January 15, 1995) Oxford Univ Press. $19.95 from Amazon / John's Friends.
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 This is a recently released, wonderfully inspiring book entitled, Blow The House Down, The Story of My Double Lung Transplant by Charles Tolchin.
Overcoming greats odds, the author eloquently tells the story of his fight against Cystic Fibrosis and how that fight ultimately leads to a double lung transplant. His story is one of triumph. It portrays how important family and friends are to overcoming difficult situations. Charlie is not the only hero in this book. He is quick to point out all the people who inspired him along the way. It is here, in telling of the extraordinary teamwork, where the books succeeds and inspires.
It is a book well worth owning. The drive and ambition told of in the book proves that we can overcome our difficulties and turn them into victories. It is a modern portrait of strength and tenacity.
If you purchase Blow The House Down through this website, you will be helping John's Friends.
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